An NFL Wife Tackles Dementia

Sylvia Mackey bio photoAs millions tune in to the Super Bowl this Sunday, I am cheering for one football wife who tackled her husband’s dementia with a game plan to keep their lives as normal as possible and in the process found her calling as a caregiving advocate.   Her passionate plea to the NFL, one of the most powerful organizations in sports, resulted in the “88 Plan,” a break-through long-term care plan that gives security and support to former players and their families when it comes to brain-related illness.

While this story is about caregiving, football and dementia, at its heart, this is a love story.





For Love of the Game and the Man

When it comes to the gladiators of the gridiron, he was the Charlton Heston or Russell Crowe of his day.  But, in the end would be his wife – on the sidelines of his entire career – who would become the warrior at the center of the action.

When John Mackey, No. 88, was inducted into the Pro Football Hall of Fame in 1992, he was only the second tight end to receive the honor.  He was and still is considered one of the best tight ends to ever take the field.  In fact, Mike Ditka, himself a Hall of Fame player and the first “pure” tight-end to be inducted into that rare club of exceptional players, stated that Mackey should have been first.

john-mackey nfl baltimore colts from WebAs a Baltimore Colt, where he played all but the last year of his career, John scored one of the most famous plays in NFL championship history.  It was Super Bowl V played in 1971, that John caught the nail-biting pass from quarterback Johnny Unitas that first careened off the hands of the opposite team’s player, grazed the fingertips of his teammate and finally wound up safely in the arms of John who then ran it for a then- record 75-yard touchdown.  It was this decisive play that helped the Colts beat the Dallas Cowboys and won John his coveted Super Bowl ring.

Twenty-one years later, as John took his place in football’s pantheon of great players for his Hall of Fame induction ceremony, right by his side was the woman who had been in that same spot since his college playing days, his wife, Sylvia.  Theirs would prove to be a true love story, challenged only by a devastating medical diagnosis.

Little did either John or Sylvia know that day in 1992 that 14 years later, John’s toughest battles would be fought off the football field with his lovely wife serving as both tackler and blocker.  At age 65 John Mackey was diagnosed with frontotemporal dementia (FTD), a degenerative disease caused by the rapid deterioration of the frontal and temporal lobes of the brain.


Tackling Dementia

What makes Sylvia’s story one of inspiration is that this diagnosis could have sacked her (in football parlance) but instead she did not let this devastating news knock her down.  One incident that highlights the special challenges that dementia caregivers face was played out at the Baltimore/Washington International Airport.

“John and I were on our way to the Super Bowl – we never missed one and I was determined this was something we were going to continue to do – it always made John happier as we got ready for these annual trips,” said Sylvia.

But, this year was different.  There was an incident with the TSA airport security that almost took them both down – literally.  Her husband, proudly wearing his Super Bowl ring and trademark cowboy hat, refused to remove these items and place them on the conveyor belt to be scanned.  In his mind, he did not understand that there had been a 9/11, he did not understand why they did not recognize him, and ultimately he thought they were trying to rob him of his precious possessions.

As John grew more frustrated with the TSA agents who, unaware of his diagnosis, thought he was just being a belligerent traveler, the agents grew increasingly irritated and finally tackled him but not after chasing the six-foot two-inch 220-pound former football player who dragged the agents several feet through the airport until several more agents joined in, handcuffed him and took him off to jail.

All the while, a tearful and frightened Sylvia was trying her best to explain to the agents and the curious onlookers that her husband was the NFL great and one of Baltimore’s favorite sons, John Mackey, that his illness meant he had no ability to understand what was happening, and ultimately she begged the officers to let her proud husband go.  She collapsed while they dragged her confused husband away, and thought to herself, “I don’t know if I can do this anymore.”

Hemingway wrote that “Courage is grace under fire.” 

When Sylvia caught up with her husband at the police station, John was back to his typical, jovial, social self – signing autographs for many of the police officers who finally recognized the NFL great.  It was at this moment as her husband basked in the bright light of his fame, that she realized she could not give up on her husband or herself.  That is when her courage took flight.

Instead of deciding that attending future Super Bowls or other travel would be out of the question, Sylvia got to work contacting the head of TSA at Baltimore/Washington International.  She explained her situation and asked for his help to allow her husband to travel – especially to the sporting events and autograph signings that he truly lived for and were important to maintaining some type of normalcy in their lives.

The TSA executive designed a plan with Sylvia to have John brought through a private area where they could scan him without incident and without his having to remove items precious to him.  In addition, the TSA executive also would contact the TSA executive at the arrival airport to explain how similar treatment of John upon his return flight out of their airport would be helpful to avoid any similar, dramatic incidents that neither party wanted.

And, these special plans are not just for those with famous last names.  One lesson all caregivers can take from Sylvia’s travel strategy is to plan ahead and ask a lot of questions.  Most airports will work with caregivers on the special travel needs of their loved ones.

The Final Play

JohnandSylviaMackey (2)Sadly, John Mackey lost his battle with dementia and passed away in 2011.  A few years before losing her husband, Sylvia had written a passionate letter to then NFL Commissioner Paul Tagliabue asking for more support for retired players when it comes to their long-term-care (LTC).  In his decade-long career, Mackey made about $500,000 – a salary that many back-up players make in one season today.  The LTC plan was championed by current Commissioner Roger Goodell and was adopted by the NFL in 2007.  The “88 Plan,” was named to honor Mackey’s jersey number and provides retired players suffering from Alzheimer’s disease, dementia, ALS or Parkinson’s disease with $88,000 annually for long-term care or adult day care or $50,000 to secure care at home.

Today, Sylvia is a board member of the Association of Frontotemporal Degeneration (AFTD) and speaks to caregivers across the country about the impact of dementia on families.

As the Giants and Patriots prepare to square off in Indianapolis in Super Bowl XLVI, Sylvia’s message to all caregivers on this game day – and every day – is to “Prepare.  Prepare.  Prepare.”

This is an excerpt on Sylvia Mackey’s story from Sherri Snelling’s book, A Cast of Caregivers – Celebrity Stories to Help You Prepare to Care

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Heart Health By the Numbers

Heart Monitor dreamstime_m_4176220 (2)Every October we are immersed in a sea of pink – the color for breast cancer awareness –  yet the No. 1 killer of women in America remains heart disease.  In fact, twice as many women die from stroke or cardiovascular disease than all cancers combined, including breast cancer.  More than 1 in 3 women will die from heart disease this year – one every minute.

This February, the American Heart Association kicks off its annual Go Red Campaign in an effort to paint the town red and get women to stop and understand the truth of their heart disease risks.  Over the last 10 years the campaign’s success has paid off with amazing results:

  • More than 627,000 women’s lives have been saved through awareness and education – that is 330 lives per day
  • Almost two million women have completed the Go Red Check-up – a 10-fold increase since 2003
  • Women have changed their heart risky behaviors – smoking has decreased 15 percent, 1 in 2 women have increased their exercise and cholesterol levels are 6-18 percent lower for those with readings over 200

“Women who Go Red have the awareness and are more empowered to make lifestyle changes,” says Dr. Suzanne Steinbaum, Go Red cardiologist and author of Dr. Suzanne Steinbaum’s Heart Book:  Every Women’s Guide to a Heart Healthy Life.  “Nine out of 10 of the women who visit our web site have made at least one healthy behavior change. But we still need to spread the word because there is a disconnect between women knowing about heart disease as the No. 1 killer and understanding their personal risk.”

One woman who became the most unlikely poster woman for heart disease is Dianne Kane-McGunigle of Quincy, Mass.  The 53-year-old platinum blonde stunner was always fit and healthy working as a personal trainer and fitness instructor and running marathons on weekends.  The mother of two had grown girls had always watched her numbers – things like weight, cholesterol and blood pressure and according to her doctor was as healthy as a woman at least a decade younger.

But one day last year, Dianne clutched her chest, hit the floor and found her police officer husband rushing her to emergency.  All she could think about was, “Please don’t let this be bad – I haven’t had grandchildren yet.”

“I come from tough Irish stock and in retrospect I was overlooking some small warning signs because in my family you just tough it out,” says Dianne.

A couple of days before this emergency, Dianne had experienced some acid reflux and her forearms were achy and kind of numb.  She chocked it up to pushing herself too hard in recent workouts.  But the night before her attack she had tiny spasms in her heart and she started sweating and feeling nauseous.  Next thing she knew she was on the floor and then in the hospital.

“Heart disease in women often presents differently than what we see in men,” says Dr. Steinbaum.  “It can be a sudden chest pain, such as what Dianne experienced, but it can also be more subtle – shortness of breath, jaw pain, back pain, flu-like symptoms, difficulty sleeping and the symptoms Dianne experienced such as nausea and vomiting.”

In addition, women who are caregivers – caring for an older parent or spouse with a devastating disease – are at greater risk for heart disease because of the prolonged emotional stress of caregiving, neglect of their own health and wellness needs and a tendency to adopt or rekindle bad habits such as smoking.

The ER doctors ran tests and told Dianne she was fine and was probably just experiencing a panic attack or had over-exerted herself at the gym.  But Dianne knew better.

“If I have any message for women out there – it is to be an aggressive advocate in your health and the health of your loved ones,” she says.  “I knew something was really wrong and I wasn’t going to be ushered out of the hospital as someone who just had a simple panic attack.”

She begged a kind nurse to run more tests.  “I’m dying,” Dianne told the nurse.  “You have to help me.”

Additional tests found that indeed Dianne had suffered a heart attack known as a widow maker.  This is a type of heart attack where it is a stenotic left main coronary artery –  a blood clot prevents blood from pumping through the left descending artery often resulting in a massive, sudden, fatal heart attack.  This is the same kind of heart attack that Rose O’Donnell survived last year.

“My doctors and I truly believe if I had not been as fit as I was, I would surely be dead,” says Dianne.

The American Heart Association advises women to know five important things when it comes to heart disease:

1)      Don’t smoke. Period.

2)      Know your numbers – blood pressure, cholesterol, blood sugar (for diabetes risk which is tied to heart disease).

3)      Maintain a healthy weight and BMI (body mass index) by eating nutritiously.

4)      Have a consistent exercise schedule (it keeps your body fit and reduces stress).

5)      Know your family history.

L to R: Dianne and her twin sister, Denise

L to R: Dianne and her twin sister, Denise

It is #5 that hit Dianne like a Mack truck.  She had all the other items checked but she had no idea that in her family, the widow maker type of heart attack is on both sides of her family tree.

“That was my wake-up call,” says Dianne, who has an identical twin, Denise.  Now this Go Red spokeswoman talks to other women about heart health and understanding each of the five things that could contribute to a life-altering event.

“Go Red encourages women to wear your red and tell five friends about the heart disease risk factors,” says Dianne.  “I have five sisters, including my twin sister, and we’ve all talked about our family risk.  I Go Red for them.”

Push Reset on Resolutions – Use Me Time Monday for Caregiver Wellness

New Years Scrabble SMALL dreamstime_m_12065390 (2)The start of a New Year is the time we reflect on all the things we wanted to do or should have done yet didn’t get accomplished in the past year.  Thus, we resolve to address these self-makeover wishes in the coming 12 months. “Coulda, shoulda, woulda” is the statement we erase from our vocabulary in January as we hit reset on our bold, ambitious plans. Yet according to the University of Scranton researcher John Norcross and author of Changing for Good, one in four of us make a resolution for the New Year but after six months only 46 percent are still sticking with it.

With the hectic pace of the holidays over, the frenzy over buying gifts and seeing friends and family is done (at least for another 12 months).  You can finally breathe.  That is, unless you are one of the 65 million Americans who are caring for a loved one – the moment to put the world on pause and get a break never seems to happen.

Which is why I feel caregivers should exempt themselves from resolutions all together.  The very nature of resolutions is a reminder of how we failed. This is why I hate them.  I hate being reminded that I have somehow failed in an attempt to accomplish a goal.  Instead of focusing on the negative I try to remind myself failure can be a teacher.  Tragi-comic author, playwright and poet Samuel Becket famously said, “Ever tried. Ever failed. No matter. Fail Again. Fail Better.”  I couldn’t say it better.

Now, if you are a caregiver – you are NOT failing – you are accomplishing one of life’s precious goals – caring for another. You may not have enough time for yourself in your caregiving state is why my message to all caregivers is to banish the New Year’s Resolutions (NYRs) and adopt my Me Time Monday (MTM) plan.

Making It Work

Monkey Teeth dreamstime_m_7590920 (2)1. Banish negativity

Richard Wiseman, a psychologist at the University of Hertfordshire in England, author of :59 Seconds and creative consultant to the TV show The Mentalist, says those who fail to keep their resolution have one common pitfall which is focusing on the downside of the goal. You suppress your cravings, fantasize about being successful, adopt a role model or rely on willpower alone. But these aren’t pleasurable experiences, they are torture and you will soon abandon them. He stated in an interview with The Guardian, “Failing to achieve your ambitions is often psychologically harmful because it can rob people of a sense of self control.”

For caregivers, resolutions are even harder especially since you are typically juggling many of life’s balls – children, career and caregiving – and the ball getting dropped is the one that says “self-care.” Adding one more thing to your To Do List in 2014 is enough to make you cry (or scream, or throw something or grab that pint of mint chocolate chip ice cream that makes you feel better, until you step on the scale).  However, there is hope.


Jump for Joy dreamstime_m_5332888 (2)2.      Make a Plan Focused on Personal Joy

My solution for caregivers is to re-wire our brains to think “what am I giving myself” instead of “what am I not going to give myself.”  This year, you are going to give yourself a gift – that’s right – no cutting back, no cutting out and no cutting corners. If you follow these steps, you will not only improve your physical health but your mental health and that is a resolution worth celebrating.  You are going to take the remote control of your life back.





Monday calendar dreamstime_14224102 (2)3.      Use My Me Time Monday℠ Method

When you become a caregiver, you often feel like you entered one of today’s popular reality TV programs – it is like Survivor and The Amazing Race all at once. Instead of frantically looking for clues, or worrying about what the tribe will say  let’s call your 2014 reality show Me Time Monday and there are 52 episodes (one each Monday).



What is Me Time?

If you are asking, “What is Me Time?” then we really have to do an extreme makeover on you. Me Time is a concept that has been written about by CNN, Forbes, WebMD and advocated by many of the self-help gurus and health professionals I admire such as Dr. Oz, Louise Hay, Dr. Andrew Weil and Dr. Alice Domar. It is the essence of self-care which is the balance you need when you are caregiving.

Me Time is how you define it. First of all, you need to make a list of all the things you love to do that are just for you. These are probably things you have abandoned or at least don’t get to as frequently if you are caregiving.

It helps to think about things you loved to do as a kid (bike riding, hopscotch), or activities you enjoyed when you had no pressing responsibilities (such as kids, a job, a husband or a loved one to care for).  Your Me Time may be gardening, reading a good book or magazine, painting or sculpting, getting a mani/pedi, going for a scenic drive or perhaps it is even more youth-oriented such as diving into a new pile of snow or ice skating or walking along the beach collecting seashells (my favorite). Make sure you only list things you love that are just for you – if you wrote down exercise but it’s something you feel you have to do rather than love to do, it’s NOT Me Time.

Why Monday?

Monday is part of our cultural DNA – for most of us, it is the start of the work week, the school week and we feel renewed energy to start something after a nice weekend break. The nonprofit Monday Campaigns was founded in 2005 in association with Columbia University, Johns Hopkins University and Syracuse University in order to apply marketing best practices to public health challenges. According to the research, the Monday Campaigns show a projected 74 percent of American adults over age 25 believe giving healthy intentions a Monday start will make them more lasting throughout the week. Part of The Monday Campaigns is Caregiver Monday, a specific campaign targeted to helping the nation’s caregivers take care of themselves.

“Day in and day out, millions of caregivers give so much of themselves caring for their loved ones that they often neglect their own health and well-being,” says Sid Lerner, founder and chairman, The Monday Campaigns. “Caregiver Monday encourages them to use that first day of each hectic week as their recharge day, to refocus on their own condition to better serve their dependent parent, child or spouse.”

Your Me Time Monday Checklist

Plan B dreamstime_m_21540655 (2)1. Write it down.  Put your Me Time Monday activity on sticky notes. Post these notes on your refrigerator, your bathroom mirror, in your wallet, on your smartphone, on your car dashboard – anywhere you will see the words every day.  These are love notes to yourself.




ca. 2003 --- Baby Steps --- Image by © Royalty-Free/Corbis2. Take baby steps. If your Me Time is taking a 30-minute walk to enjoy nature and outdoors (a great stress reliever), start with buying new walking shoes on your first Monday (it’s all about the shopping for me).

The following week it may be getting just a few minutes to walk around the block – you don’t have to achieve 30 minutes on Week 1 – just get started.  Once you get in the groove you will find you plan your Me Time because of the comfort it brings you.

If you miss a week – don’t beat yourself up.  Evaluate what derailed you and see if you can eliminate the obstacle the next week.  What’s great about Me Time Monday – you have 52 chances to stay on track! And you don’t have to do your activity on Monday – just use Monday as your “check in” point for the week – do you know what you are going to do and how to find that time?


Train tracks dreamstime_m_10769462 (2)3. Track your progress. Put a little heart on your weekly calendar when you do your Me Time or tell a friend who can be your cheerleader about your plan and let them applaud your weekly progress (and help give you a caregiving break so you can get your Me Time – see Lotsa Helping Hands as a great way caregivers can get help to get a break).  Getting reinforcement – whether through a friend or seeing a lot of hearts on your calendar will keep you motivated.




Mountain Top dreamstime_m_20665256 (2)4. Live in the moment. When you are practicing your Me Time take a few minutes to really feel it. Close your eyes and put your imaginary remote control on “Pause.”  Feel everything around you. Stop and try to use each of your senses in what you are doing.  Can you see yourself happier?  Do your shoulders relax? Do you feel a little more refreshed? Do you hear the sounds around you?  Do you smell the wonders of your environment? Do you feel re-energized so you can keep caring for everyone around you because you took a little Me Time? Sensory cataloguing is a great way to revisit your Me Time and re-wire your brain to crave that Me Time so it becomes essential to your well-being.



Remote Control dreamstime_m_6705349 (2)Now push “Play” on your imaginary remote control and let your Me Time Monday reality show begin!  To view the Me Time Monday videos including how celebrities find their Me Time – visit our Caregiving Club YouTube channel.





Note:  This blog is adapted from A Cast of Caregivers – Celebrity Stories to Help You Prepare (sold on Amazon, Barnes & Noble and other online retailers and booksellers).

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Suze Orman Shares Her Cost of Caregiving Story

Sherri Snelling talked to America’s financial goddess, Suze Orman, and found when it comes to caregiving, we all face challenges with money. Read Suze’s story as caregiver to her mom and what she learned about the costs of long-term care. You can also read this article on on and PBS Next

Suze Orman’s $25,000 a Month Cautionary Tale – Your Parent’s Long Term Care Can Cost You

100010081-suze-orman-headshot-2013.240x240Suze Orman has been called a “force in the world of personal finance,” was recently named one of the Top 10 most influential celebrities by Forbes magazine and is the single most successful fundraiser in the history of Public Television.  Yet even with the award-winning TV show, best-selling books, numerous accolades and worldwide influence as a guru of empowering people to save for retirement, get out of debt and have a healthy relationship with money, Orman admits she was as unprepared as the rest of us for becoming a caregiver for her late mother.

It was just a few years ago when Orman realized the harsh, brutal winters of her Chicago hometown were talking a toll on her mother, Ann, who was in her 90s. Her mom was becoming more and more isolated – living alone and not venturing outside.

“She just stayed at home and wouldn’t go out for months on end,” Orman told me.  While Orman lived in San Francisco at the time, her brothers were closer – one in Chicago where he picked up their mother for Sunday dinners – but it wasn’t enough to maintain their mother’s spirits and health according to Orman.

After a family discussion about Ann’s long-term care, Orman made the difficult and rare decision to not only move her mom to an assisted living facility in Florida, but Orman pulled up stakes herself and with her wife left their beloved Bay Area home to move to Florida to be there daily with her mom.

A decision to move because of caregiving is not only emotionally difficult but may be financially impossible for most Americans.  More than eight million of the nation’s 65 million caregivers live long-distance – defined as two hours or more away – from their loved one according to the non-profit Caring From a Distance. Genworth which conducts an annual survey of long term care costs for nursing homes, assisted living facilities and in-home care issued a report, Beyond Dollars – The True Impact of Long-Term Caring,  finding 42 percent of caregivers moved their older parent into their home for three years or more to care for them and off-set in-home care costs.

What was truly unique and brilliant about Orman’s plan is SHE moved into the assisted living facility with her mom for the first week to help her mom adjust and settle into her new home.

“I looked at it like the first day of school – you want to ease your parent’s transition to something new and I wanted to see firsthand how things ran,” explains Orman.  “It’s one thing to make an initial VIP visit to a facility, it’s another to wake-up and have breakfast in the dining room with everyone else and experience the daily routine.” Orman chuckles as she remembers residents and staff wondering why Suze Orman was living in assisted living but the experiment helped her understand the realities of long-term care.

The Real Costs of Care

Photo courtesy of Suze Orman

Photo courtesy of Suze Orman

While Orman’s mom agreed to the move and new living accommodations, Orman says she had not been successful in getting her mom to discuss and select a long-term care plan that would have covered these costs. According to the Department of Health and Human Services, at least 70 percent of people over 65 will eventually need long-term care, either at home or in a nursing home, an expense that will not be completely covered by Medicare, a fact lost on most unaware Americans. A great resource for caregiver education on long-term care is the web site operated by the Administration on Aging which outlines long-term care benefits, services and who pays for what.

“I filled out the paperwork on long-term care plans and gave it to my mom on several occasions but she never signed them,” laments Orman.  She believes it is the typical response of parents, particularly mothers, to not want their children, no matter how adult or capable, to worry about them.  Yet, ultimately without a good long-term care plan or robust savings, the financial burden will fall to the caregiver.

“I spent $25,000 a month the last two years of my mom’s life to have around-the-clock care for her and I was lucky because I was in a position to afford the cost – something most Americans cannot do,” cautions Orman.

Last year the Commission on Long-Term Care, a task force created by Congress to address the gaps when the CLASS Act (Community Living Assistance and Services and Supports) long-term care program (which was championed by former Senator Edward Kennedy) was repealed, issued a summary of recommendations recognizing the tremendous financial burden on families to adequately address our nation’s long-term care costs. However, no specific remedies or solutions were spelled out frustrating many in the aging organization network.

In response to the Commission’s recommendations, Howard Bedlin, vice president of Public Policy & Advocacy for the National Council on Aging, said in a statement, “Medicare does not cover long-term care, private insurance is unaffordable or unavailable to the vast majority of Americans, and individuals and families are forced to spend-down their life savings into poverty before getting help from Medicaid. It is now time for Congress to stop ignoring the problem and take action. Far too many members of Congress are out of touch with the enormous challenges faced by millions of middle-class families struggling to afford long-term care services needed to stay at home and out of institutions and relieve the tremendous economic, physical, and emotional burdens of caregiving.”

As Suze Orman learned in her own caregiving experience, the emotional and financial burdens for long term care of our elder population can fall squarely on the shoulders of family caregivers.  She advises caregivers to avoid living in denial of this situation today because it may destroy your financial stability tomorrow.  Or as Orman succinctly told me, “It’s easy to die, it’s hard to age.”

Suze’s Sage Financial Advice for Caregivers

Bucketful of Cash dreamstime_xs_13109928 (2)Orman has now counseled other family members, including her aunt and uncle, to secure long-term care plans. Her advice is if you can afford the premiums and you can make a promise to yourself to continue to pay into the plan even after 10 years, then it is a wise financial move.

Since January is Financial Wellness Month, I asked Orman to provide some savvy financial advice for caregivers. A great help is to check out Suze’s financial planning tools, “Must Have Documents” on her web site as well as these tips:

  • Buy only what is affordable. Do not stretch to buy a policy that covers 100 percent of anticipated future costs. It is far smarter to buy the amount of coverage for which you are sure you can keep making the premium payments. It makes no sense to buy a policy today that you will have to abandon in a few years because it is too expensive; you will get no benefit if that happens. Focus on what is safely achievable: Better to buy a policy that will cover 25 to 50 percent of future costs than no policy at all.
  • Insist on an inflation adjustment. The cost of care rises each year; you need a policy whose benefit will also increase. Given the above-average inflation rate for health services, look for a 5 percent annual inflation adjustment.
  • Aim for the shortest possible elimination period. This is the time before your policy kicks in; for example, if you have a 30-day elimination period, you’d pay for your first 30 days of care out of pocket. The shorter your elimination period (30 days is a typical minimum), the pricier the policy. If it’s 90 days or longer, make sure you have other assets that you could use to pay for your care for that length of time.

You can find more costs of caregiving and financial tips/resources in Sherri’s book, A Cast of Caregivers – Celebrity Stories to Help You Prepare to Care.

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The C-A-R-E Conversation Series


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In Sherri Snelling’s top-selling book, A Cast of Caregivers – Celebrity Stories to Help You Prepare to Care, the chapter on how to have the C-A-R-E  Conversation has become one of the highlights of the book and in Sherri’s speaking engagements. Coming in late 2016, Sherri’s next book, The C-A-R-E Conversations, will be published.

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The reality is having conversations, whether it is with an aging parent, an ill spouse, our siblings, our kids, a boss or co-worker, friends and others are difficult. We avoid these conversations but this silence can lead to confusion, frustration, anger, depression and other emotions that ultimate impact a caregiver’s health and wellness.

Learning to understand the issues and how the conversation sounds on either side of the talk are tools every caregiver needs. This year, Caregiving Club offers a monthly “C-A-R-E Conversation” article – excerpted from Sherri’s upcoming book.  We’ll give you tips and resources on how to have difficult conversations with all those around you when you take your caregiving journey.

2016 will be the year caregivers can say,

Let’s Talk!

Caregiving Is A Small World

Global heartCaregiving is a global phenomenon – affecting every culture, every society, every community worldwide.

Click here to read our CEO Sherri’s Snelling’s Huffington Post article on how customs in other countries may help American caregivers on their journey.

Joan Lunden’s Coast to Coast Caregiving Coverage

NewsletterAdI’ve had the privilege of interviewing Joan Lunden several times over the last few years. She is an inspiration – as a woman warrior battling breast cancer, as a mom of seven (!!), as a successful businesswoman and as a caregiver to her mom whom she lost in  2013. I  first met Joan on the set of a special TV program Joan hosted for RLTV, “Taking Care with Joan Lunden,” where Joan interviewed me as an expert on caring for an older loved one at home.  The following is an excerpt from my book, A Cast of Caregivers – Celebrity Stories to Help You Prepare to Care, which includes Joan’s caregiving story.

Wake Up Call to Caregiving

For 17 years throughout the 1980s and 1990s, she woke us all with “Good Morning America” as co-host of ABC-TV’s national morning show.  But, it was 10 years ago that Joan Lunden, the sunny, blonde, California-born and raised TV journalist received her own wake-up call.

She remembers it like it was yesterday.  In her words, “It 100 percent shook me up.”  It was back in 2005, that her brother Jeff, who had long suffered from Type II diabetes, passed away.  Joan had been caregiving for both her ailing brother as well as her then 87-year-old mother, Gladyce.

While her brother suffered the ravages of diabetes – blurred vision, headaches, operations on hands and feet, etc. – her mother, Gladyce suffered from signs of dementia and had several mini strokes over the years.  For both their safety and Joan’s peace of mind, she had purchased a condominium in the Sacramento, California area where Joan had grown up and paid for them both to live there together.

Meanwhile, Joan lived across the country with her home base on the East Coast where she was raising two sets of twins under the age of 10 with her second husband and playing “empty nest” mom to her three older daughters from her first marriage.  In addition, she had not slowed down since leaving “Good Morning America” in 1997, traveling the country as a spokesperson on healthy living, authoring several books, and managing a growing business focused on healthy living.

Joan was both a Sandwich Generation caregiver – one of the 24 million Americans caring for children and a parent simultaneously and thus, sandwiched between caregiving duties – and a long-distance caregiver.  More than 8 million caregivers care for a loved one long distance – whether they are two hours away or across the country as in Joan’s case.  This makes caregiving more difficult – you are not there every day to see the small things which can be warning signs that something is changing and your loved one needs more care.

Joan and her mother, Gladys

Joan and her mother, Gladys

The Sunrise, Sunset of Alzheimer’s 

Although she mourned her only brother’s passing, it was not his death that rocked Joan’s world.  It was the realization that her mother’s dementia was so much worse than even she knew.

“My mom had ‘sundowners,’ a typical symptom of dementia and Alzheimer’s where the person becomes irritated, irrational and sometimes violent as the sun is setting,” explained Joan.  She also showed signs of paranoia especially after Joan moved her mother into an assisted living facility.

“Mom was afraid to go downstairs and visit with the other residents, they frightened her and yet she could not tell us why,” said Joan.

Joan soon realized that she had been overlooking her mother’s real needs and issues. “It is easy to overlook things when you live far away from your loved one,” says Joan.  “They put on a happy face and they seem fine and you may see small things but you want them to be fine.”

Alzheimer’s disease, which affects more than 5 million Americans today, can also be a sneaky disease.  An older loved appears relatively healthy and fine physically but is suffering from dementia that can cause sudden mood shifts or other emotional problems, especially frightfulness and forgetfulness.  It is only through the activities of daily living that one sees how critical proper care becomes. The long-distance care Joan had ben providing her mom had given her blinders to her mom’s real needs.

Joan encountered what I call “Goldilocks Syndrome” trying out several facilities before finally finding the right environment for her mother’s health needs and happiness. After Gladyce suffered several falls breaking her foot, her rib, then hitting her head and needing staples did Joan realize a specialized care facility would be necessary.

The social worker at the hospital where Gladyce was treated for her falls put Joan in touch with a senior care facility advisor.  The advisor assigned to Joan assessed Gladyce’s needs and then took Joan and Gladyce on a tour of several facilities that she thought would work.  They settled upon a small residential care facility with just six residents in a large home setting.

Press Hat dreamstime_m_11320792 (2)Using Her Journalistic Instincts – Tracking Down Leads

When Joan’s brother passed away, it was left to Joan to decide if her mother could continue living independently with some personal care assistance from an outside agency or a professional.  In addition, Joan needed to go through all the paperwork for her mother that her brother had been handling.  Joan, her brother and her mother had been a threesome as Joan grew up since her father was tragically killed in a plane crash when Joan was only 14.

Faced with a mass of paperwork and a lot of missing documentation, Joan got down to doing what she does best – investigating.  As a journalist you have to be inquisitive and look for clues to the real story.  In Joan’s case she had to search through mountains of paperwork and become an amateur genealogist to be able to help her mother.  She could not access her mother’s bank account, she could not find a social security card or driver’s license, and she had nothing to go on except she knew her mother’s maiden name.

An elder law attorney that Joan had secured advised her to find her mother’s birth and marriage certificates.  This would be verification for the Social Security office to issue her mother a duplicate card since Joan could not find the original.

In addition, Joan would have to have her mother authorize her as a co-signer on the bank account and grant her access to health insurance and other critical information that has privacy protection.  Thank goodness in Joan’s case her mother was still lucid enough to authorize her daughter to help – in many caregiving situations the loved one can no longer provide that authorization and it becomes a costly and time-consuming legal burden for the caregiver to get this done.

“You think you know your parents but then something like this happens and you realize maybe you do not know as much as you should,” says Joan.  This is especially true when it comes to verifying records and making decisions on their behalf.

In retrospect, Joan says, “I wish I had the family meeting before the crisis in care happened but I am typical.  The crisis happened and all of a sudden you have to become an instant expert at so many issues around elder care.”

Joan’s advice to all caregivers, current and future, is to take a page from her long-running morning show career.

“Have the conversation, start the dialogue, do the interview with your loved one,” she advises.  “And, most importantly, don’t stop communicating – talk to your loved one as often as possible, talk to their doctor, ask questions, talk to the facility administrators and health care professionals – stay on it .  It is the most important tool you have – it keeps you connected to your loved one and to the essential care needs they have.”

Joan Lunden People Magazine Oct 2014Joan lost her mother in 2013 but is following in her energetic mother’s footsteps. Taking on a new role as a breast cancer survivor, Joan’s lifelong healthy eating habits now include a non-GMO diet. As the poster gal for 60 being the new 40, Joan says her caregiving experience has given her new insights into the message of “prepare for the worst and hope for the best.”  Her inspirational attitude is captured in a book she co-authored about caregiving stories, Chicken Soup for the Caregiver’s Soul.



©2015 Sherri Snelling

The Difference in Caring for Moms versus Dads

African American Family dreamstime_m_4832256 (2)The Sandwich Generation is our focus this week. According to Pew Research,  47 percent of Americans  in their 40s and 50s are caring for both children as well as aging parents. While there are many books to help us understand the difference in raising a boy or a girl, there are not a lot of books which talk about the difference between caring for an aging mom versus an older father.

Read my article for PBS Next Avenue about “The Difference in Caring for Moms versus Dads.”

Holly Robinson Peete – Superstar Sandwich Generation Caregiver

hrp headshotWhen it comes to superstars in this game we call life, Holly Robinson Peete is a top draft pick.  An actress, talk show host, singer, author, passionate advocate, wife and mother, Holly appears to have that perfect existence.  But, even the most perfect pearls are formed by being tossed about in rough seas.

Holly’s perfect life has faced two unforeseen and often devastating blows.  While juggling a thriving acting career, marriage and motherhood, she was also caring long distance for her father who suffered with Parkinson’s disease and simultaneously learned that one of her twins had autism.

The Sandwich Generation of family caregivers – more than 24 million strong according to the National Alliance for Caregiving – is defined as someone who is sandwiched between generational care, caring for a child or children still at home while also providing assistance or full-time care to an older parent.  In Holly’s case, she is Super Sandwich Generation: dealing with a father with a progressive disease of the central nervous system, and raising twins, one who was healthy and active (her daughter Ryan), and the other (son RJ), who was withdrawn and showing the symptoms of a special needs child.

For some people, this double hit would be enough to bring you down before the game even gets started.  But, for Holly Robinson Peete, she learned to fight through to get to the goal line.

From Sesame Street to 21 Jump Street

It was in the 1980s when Holly was still in college at Sarah Lawrence in Bronxville, New York, that her father started showing the early signs of what would be eventually diagnosed as Parkinson’s disease.  He was only 46 years old.

Matthew-T-Robinson-Sesame-street w Big BirdHer father, Matthew T. Robinson, Jr. was a producer and also played “Gordon” on the award-winning PBS-TV children’s program Sesame Street in the ‘60s and ‘70s.  A decade later he went on to become one of the most prolific TV screenwriters for shows such as the wildly popular, The Cosby Show.  Just as her father thrived in TV, Holly came by the acting gene naturally.  In the ‘80s and ‘90s, she decided to give acting a go and was riding high on a career that saw her become a breakout TV star on 21 Jump Street alongside a then unknown Johnny Depp followed by her star turn on Hangin’ with Mr. Cooper.  During this time, since Holly’s parents were divorced, it was up to Holly and her brother to support their father as his disease progressed.

It is estimated that 1 million people are diagnosed with Parkinson’s disease (PD) and each year there are 60,000 new cases in U.S.  This neurodegenerative brain disorder is characterized by a progressive destruction of cells in the central nervous system that reduces supply of dopamine causing nerve cells to fire incorrectly and causing patients to lose control of their normal body movements. While later stages of the disease are devastating, early warning signs can be subtle and progress gradually.

Not every PD patient has the same symptoms. Some experience poor balance and frequent falls, rigidity or muscle stiffness, tremors, and Bradykinesia which is the slowing down or loss of movement (shuffling steps, loss of one arm swing when walking, and difficulty or inability to turn the body).

“My first reaction to my dad’s diagnosis was ‘what is Parkinson’s’?” says Holly.  As a young college student she raced to the library to find out everything she could about the disease. “I saw two words in the books I read:  neurological and incurable.  I felt helpless and in a dark place and it was hard, this was in a pre-Google period and there was no Michael J. Fox or Muhammad Ali who had raised awareness about Parkinson’s.”

Double Dose of Devastation

While still providing care to her dad, Holly’s career was taking off and so was her love life.  She had fallen for Rodney Peete who had been a superstar college football player at USC and one of the NFL’s best quarterbacks with a 16-year career playing for the Philadelphia Eagles, Washington Redskins, Dallas Cowboys and Carolina Panthers.  They were married in 1995 and two years later Holly was a sought-after actress, NFL wife and new mom to fraternal twins Rodney Jackson and Ryan Elizabeth.

It was at this exciting time for Holly, that life gave her two blows.  Her father’s illness was progressing to a point where he needed around the clock care and Holly and her brother decided he needed to live in a special care facility.   Since Holly lived in Los Angeles and her father was in New York, this made Holly one of the nation’s 8 million long-distance caregivers.

“The day we moved my dad into the facility was singlehandedly the worst day of my life, to this day I still have regrets about the decision but there really were not a lot of choices,” says Holly with the pain still evident in her voice even though this was almost 13 years ago.  She had her twins, a husband who was on the road for six months out of the year and she was pregnant again.  “The guilt has never really gone away but I don’t hold myself accountable anymore – it was a hard choice but really the only choice.”

cover of autism file magazine Apr 2012It was during this painful period in Holly’s life that her three-year-old son, RJ, was given a devastating diagnosis:  autism.

“I know it’s a cliché but when we were told about RJ, my life just stopped right there in that doctor’s office,” says Holly.  “I call that day the never day – we were told all the things my beautiful baby boy would never do and at first I felt 10 times more than hopeless.”

Holly recalls how the diagnosis of her son was very different from learning about her dad’s disease.  “Even though my dad was young when he was diagnosed with Parkinson’s, it was totally different to hear that your three-year-old child will never really do anything normal.”

Mars v. Venus

What happened next came out of left field for Holly.  Her husband Rodney had been “my rock while I cared for my dad,” always there to support his wife and the father-in-law who adored him.  But, suddenly with RJ’s diagnosis, Rodney became withdrawn, frustrated and definitely living in denial.

“This was the classic men are from Mars, women are from Venus scenario,” says Holly.  “Men and women just think and do things differently.”

Initially, Rodney was in denial about RJ and as is typical of fathers of special needs children, he distanced himself and was less involved in the daily struggle in part because he was still playing in the NFL which kept him on the road for months.

While it is estimated that 85 percent of parents with special needs children divorce, Holly actually thinks the distance saved their marriage.  “It gave me time to cope on my own without facing Rodney’s different attitude and ideas about RJ,” says Holly.  “Rodney originally thought RJ just needed more discipline, I knew it wasn’t about that at all.”

While Rodney retreated, Holly got to work.  She learned everything she could about autism in the same way she had educated herself about Parkinson’s disease.  Holly learned that autism impairs a person’s ability to communicate and socialize normally with others and often has a physical manifestation of repetitive behaviors.  Statistics showed that one in every 110 children has autism spectrum disorder (ASD) and symptoms can be subtle or significant.  She also learned that there is no cure for autism.

Given little hope by doctors for RJ’s ability to assimilate into normal childhood, Holly refused this dismal outlook for her son and turned to alternative measures.  She found a wonderful autism therapist, she established a gluten-free diet for RJ which had some very positive effects and she brought music into his life which she found soothed her son.

When RJ recorded his first music single, Holly believes it was a way for him to not feel “judged” as he often did during sports or other activities.  She also maintained as normal a life as possible for her other children, which in addition to RJ’s twin sister Ryan now included sons Robinson and Roman.

During this time, Rodney and Holly admit to a lot of foul plays with each other.  In reflection, Holly says, “I wish I had been more patient with Rodney and respectful of his denial but I was too focused on RJ.”  She credits Rodney for coming up with the winning game plan.

“Rodney had that ‘oh my god’ moment when he realized he could lose his family but he chose instead to enter into the fight and save us all.”  Holly said when she and Rodney got the same game plan going, everything changed.  Just a few weeks ago on Valentine’s Day, Holly and Rodney renewed their marriage vows with all four children as their attendants.

Photo: Christopher Voelker

Photo: Christopher Voelker

Team Peete Scores

Rodney Peete's book on the family's journey with his autistic son.Rodney credits an autism father support group with helping him understand that instead of being dismayed with RJ’s inability to operate in Rodney’s world, Rodney learned to enter RJ’s world.  The result was Rodney’s 2011 book, Not My Boy! A Dad’s Journey with Autism, which he hopes will help other fathers of special needs children who are struggling to understand their situation and create a “new normal.”

Holly co-authored a book for Scholastic with her daughter Ryan who wanted to help other kids learn about her brother’s autism.  The book, My Brother Charlie, gave Ryan a hero’s role in her brother’s daily challenges and won an NAACP Image Award.  MyBrotherCharlie book cover

And, together Holly and Rodney have built the HollyRod Foundation, originally created to support families facing Parkinson’s to honor her father now expanded to also help families living with autism in recognition of the lessons the Peetes have learned from RJ.

Her relief from the guilt she says is inevitable for all caregivers comes from the impact of the HollyRod Foundation that helps families just like her family needed answers and hope.  “At some point, you take your guilt and you move on and I did that by paying it forward,” says Holly.  “Knowing that my family can help others and maybe ease their caregiving journey is the best gift of all.”

Spoken like a true superstar.



Author’s Notes:

Sherri has had the honor to interview Holly several times, watch one of these interview from the red carpet at the Carousel of Hope Ball 2013:

Carousel of Hope Ball 2013 – Celebrity Interviews from the Red Carpet



photo (2)Sherri and Holly were also the keynote speakers at the 2014 Astellas employee event in Chicago







Sherri Snelling interviewed Holly Robinson Peete for her book, A Cast of Caregivers – Celebrity Stories to Help You Prepare to Care.

CastofCaregivers Cover FINAL

©2015 Sherri Snelling

Norman Lear on Longevity, Laughter and Love for America

Recently I interviewed Norman Lear for PBS Next Avenue. The 92-year-old TV producing icon remains sharp – both in wit and wisdom. For September Healthy Aging Month, I share his prescription for a long, happy life that includes tips which many caregivers may find helpful while navigating their caregiver journey.

Read the full PBS interview here: Norman Lear – Longevity, Laughter, Love of America

Norman Lear sandwiched between Sherri Snelling (left) and Alex Witt (right) of MSNBC

Norman Lear sandwiched between Sherri Snelling (left) and Alex Witt (right) of MSNBC

©2015 Sherri Snelling


Sandwich Generation caregivers usher in a new era at work

Career Blocks dreamstime_m_9545288 (2)Labor Day seems like an opportune time to highlight the nation’s largest volunteer health care workforce: America’s 65 million family caregivers. With seven out of 10 caregivers working full or part-time, more employers are having to address a shift in employee lifestyle needs from child care to elder care.

Earlier this year, I spoke at a Boomer Summit conference about employers and the best practices for working caregivers. I started with the famous logo from the AMC series Mad Men (Don Draper in silhouette, cigarette smoldering) with the headline, “The end of an era.”

Yes, the TV drama series based on life in the ‘60s and ‘70s ended its run this spring but we are also experiencing the end of one era and the dawn of another in offices, factories and businesses across the country as the rising tide of Sandwich Generation caregivers juggle life as working moms and dads while now also caring for older parents.

Since the ‘60s the needs and lifestyles of the American worker have continuously evolved and many employers have responded with the types of benefits and services to support those needs.  When women entered the workforce in record numbers in the ‘70s and ‘80s, more child care services became the norm.

Today with women comprising about half of the U.S. workforce and most boomers postponing retirement, workplace issues are no longer about just child care but more often about elder care as well.  Currently, 15 percent of the entire U.S. workforce is performing their first job at their workplace then performing their second job caring for an older loved one when they get home. By 2020, one in five workers will be over the age of 50 – the age of a typical Sandwich Generation caregiver who will help children facing looming college costs while also managing the needs – physical, emotional and financial – for older parents.

“My employer’s program to support caregivers was a lifeline,” said Matthew Skahill, associate director, scientific liaison for Astellas, a pharmaceutical company headquartered in Northbrook, Ill.

Skahill, age 51, found himself with one daughter at college abroad, another daughter gearing up for college applications and an aging and ailing father with Parkinson’s disease who lives in Missouri while Skahill navigates caring from a distance in Colorado.

The program launched by his company last year, includes a robust set of benefits including usage of a professional geriatric care manager to meet with the elder, assess the needs, create a care plan and then walk the family through the options for community services and other help. While this type of service is not new, a care manager network program from UnitedHealthcare has been around for more than 30 years, Astellas included other benefits Skahill found invaluable.

“I was able to access the identify theft protection service for both my daughter in London, who had suspicious activity on her credit card, as well as my younger daughter,” explained Skahill.  He is planning to access the college financial counseling service of the benefit to prepare for his second child entering college soon and to look for additional help with his older daughter, who is pursuing a college degree in London. And, Skahill and his father are discussing having a legal document review to ensure everything is in order based on his father’s latest wishes and ongoing caregiving needs.

According to 2013 Pew Research report, nearly half (47 percent) of all adults in their 40s and 50s  are considered the Sandwich Generation with a parent over age 65 and at least one child under age 18 or an adult child still receiving financial assistance from mom and dad. In addition, the report stated one in seven Sandwich Generation caregivers are providing financial support for both their children and their aging parents.

“We take a long term vision of our employees – they are as important to us as the products we create or the patients we serve with our products,” said Collette Taylor, senior vice president of human resources and facilities management for Astellas. “Our employees are an investment and since our workforce tends to skew slightly older than the national average, we took a holistic view of their lifestyles and our role in helping them be healthy, financially secure and happy. This program is not just a source of pride for us, it also makes smart business sense.”

While the $31 billion a year MetLife and the National Alliance for Caregiving  estimated U.S. companies encounter based on lost productivity is one rationale for companies to institute caregiver support for its employees, impact to the bottom line is not always about productivity, it can also be about flexibility.

Tall Buildings dreamstime_17159364 (2)A study published in the Academy of Management Journal, found companies that employ workplace flexibility such as job sharing, phased retirement of older workers, flex hours, telecommuting and other benefits for caregivers may have some upfront costs but ultimately realize a return on the bottom line. One study tracked the announcement of new work-life balance policies by Fortune 500 companies and found those firms’s stock prices rose .36 percent on days following these announcements suggesting investors believe these policies to be profitable investments.  The White House Council of Economic Advisors Report (June 2014) showed 52 percent of workers said they could do their job better if allowed a more flexible schedule.

LifeCare, a work-life services company that provides the caregiver programs to several Fortune 500 companies with its 61,000 clients, has benchmarked utilization of its caregiver services and found it has almost doubled from 2011 to 2014.

“This increase in using the expertise of a professional geriatric care manager showcases the growing need for working caregivers to receive some support through their employer,” said Bert Wachtelhausen, senior vice president of sales, client services and marketing at LifeCare. “These type of services are investments now in employees which pay off in long-term dividends for a company’s bottom line.”

Another organization that recognizes the caregiving role of its faculty and employees is Emory University. For more than 20 years, this academic institution has offered flexible leave policies, long term care insurance, research and referral services for elder care help, each year adding more to its caregiving services menu.  Today, caregiver workshops and access to a professional geriatric care manager network have high utilization rates among caregiving faculty and staff. The growing demand for caregiver guidance recently led Emory University to add an Onsite Care Consultant.

“Caring for and worrying about an older parent is often hard, especially if they do not live nearby,” said Skahill. “To know my employer not only understood what I was going through but provided services to help me through this time in life, makes a huge difference in being able to manage it all.  I feel like they are sincere in wanting to make a difference in my life.”

Note about the author: Sherri Snelling hosts the monthly “Caregiver Network” webinars for LifeCare’s 61,000 employer clients and recently spoke at the employee launch event of the Astellas caregiver benefit program. [This article originally appeared on PBS Next]

©2015 Sherri Snelling

February Means The Grammy Awards and Music Therapy

FEB Grammy Music Therapy


February means it’s Grammy season and the sound of music is all around. This month we celebrate the caregivers, like our friend Holly Robinson Peete, who are musical stars and caregivers as well as luminaries in the music business such as interviews with Quincy Jones, Smokey Robinson, Alan and David Osmond, of loved ones. On a somber note we share the caregiving story of Casey Kasem, who was known best for his radio show, “America’s Top 40” but in his later years became a case study in how families need to have the C-A-R-E Conversation to avoid conflict and event elder abuse. We’ll also share articles about the power of music to heal – through music therapy or just providing the “food for the soul” all caregivers need.

Here are our articles that show music is a must for every caregiver:

Music Therapy – a 5-Note Plan for Caregiver Calm (originally published on the Alzheimer’s Association blog)

Alzheimer’s App Uses Singing to Boost Mood (originally published on PBS Next Avaenue)

Holly Robinson Peete’s Most Challenging Role – Sandwich Generation Caregiver (Holly’s in-depth story found in Sherri’s book, A Cast of Caregivers)

Catherine Zeta Jones – a caregiver’s self-care mental health plan (who won her Oscar – also happening this month – for her singing/dancing role in Chicago)

Glen Campbell’s Farewell Tour (originally published on PBS Next Avenue)

The Osmond Family’s Greatest Act – Winning the Daily Battle Against MS (Sherri interviewed both Alan and Davis Osmond for her book, A Cast of Caregivers)

Casey Kasem’s Legacy for Caregivers (originally published on PBS Next Avenue)

Music of the Night – 2013 Alzheimer’s Association “A Night at Sardi’s” Event

Stars Take Center Stage to Fight Alzheimer’s disease – 2012 Alzheimer’s Association “A Night at Sardi’s” Event


And, many of the articles on our Caregiving Club site and the wealth of information we provide can be found in our CEO, Sherri Snelling’s book, A Cast of Caregivers – Celebrity Stories To Help You Prepare to Care.

CastofCaregivers Cover FINAL


May is National Mental Health Month

MAY Natl Mental Health Month

According to the National Allliance on Mental Illness (NAMI), one in five Americans has a mental health issue and one in 25 Americans has a serious mental illness such as schizophrenia, bipolar disorder or major clinical depression.

Because of the stigma and lack of understanding surrounding mental illness, Glenn Close, whose sister and nephew are challenged by mental health issues, founded Bring Change 2 Mind, to help educate the public on mental illness.

Source: Dreamstime

Source: Dreamstime

In recognition of May National Mental Health Month, read our CEO Sherri Snelling’s article about how Glenn Close is one of the leading voices in helping to change our minds about mental health and support the family caregivers caring for those with mental illness:

Glenn Close wants to change your mind about mental illness

Is Your Depression Situational or Serious?